I’ve sat on the couch with notes scattered around me, half-finished symptom logs open, medication lists in two different places, and that sinking feeling in my chest that said, I cannot keep doing this shit. Symptom tracking for chronic illness can sound simple when people talk about it online. In real life, it can feel…
I was scrolling through TikTok the other day, well, mostly because my body had decided that moving any more than my thumb was a no-go for the afternoon. I was researching whether or not you can make a passive income with chronic illness, and I…
I stood at the doorway of the playroom yesterday and just stared. There were plastic dinosaurs engaging in what looked like a prehistoric riot, half-finished drawings scattered like confetti, and enough stray Lego pieces to constitute a health and safety hazard. In my before life,…
I remember the exact moment the guilt nearly swallowed me whole. It was a Tuesday afternoon, and my body felt like it was being crushed by a lead weight. My FND was flaring, my joints were screaming, and all my six-year-old wanted was for me…
It was 10:00 am on the dot. I was sitting on my lounge, probably staring at a wall or trying to remember if I’d actually took my morning meds, when the realization hit me like a physical punch to the gut. I had an appointment.…
Some days, the idea of living a meaningful life with chronic illness feels like a sick joke. On the days when your bones feel like lead, your brain is a fog of static, and the simple act of breathing feels like a marathon, meaning is…
It’s the most exhausting game of pretend you never asked to play. You’re standing in the middle of a grocery aisle, or maybe at a family BBQ, and on the outside, you look “fine”. You’ve brushed your hair, you’re standing upright, and you might even…
There is a specific kind of silence that happens when you’re chronically ill but look “fine.” It’s the silence of people watching you struggle and deciding you’re just lazy. It’s the sharp, jagged edge of a family member calling you “useless” because you can’t make…
If you’ve been Googling online jobs for disabled women at 2am, half-panicked, half-hopeful, I get it. You’re not looking for a hustle. You’re looking for a way to earn money that doesn’t punish you for having a body that needs care. I used to believe…